All News & Announcements

Cassie Finnigan’s Contribution to Improving Newborn Screening for  Anorectal Malformations Cassie Finnigan, Founder of Max’s Trust, contributed as a peer reviewer, to the Royal College of Paediatrics and Child Health Core Online Learning Module: Detecting Anorectal Malformations (see link below) Drawing on both her personal experience and also supporting families affected by these conditions, her input helped ensure the course accurately reflects the challenges faced by both

Kate and Kate outside the RCSEd At a meeting of the Royal College of Surgeons of Edinburgh, Kate Tyler, a trustee and patient advocate, delivered a talk reflecting on her lived experience of complex congenital conditions and what it’s like to live more than her diagnoses. Her presentation focused on the personal, social and healthcare‑related realities of growing up and living with multiple congenital anomalies, moving beyond medical labels to emphasise person‑centred perspec

EAU26 (Annual European Association of Urology (EAU) Congress 2026) was a powerful reminder of how bringing together patient advocates and clinicians can advance care for people living with rare uro-recto-genital diseases and complex conditions.

We have been overwhelmed with support from everyone this week. We had over 250 visitors over the 1st 2 days after our launch which is brilliant. Flyers for Max's Trust are arriving with Doctors and hospitals this week to help spread the work of Max's Trust. You can help us spread the word too by posting on your socials and your support groups, the more we are seen the more people we can connect with and help. Thank you from everyone at Max's Trust, we appreciate all the lov

We are delighted to welcome you to our newly redesigned website, a space dedicated to supporting individuals with anorectal malformation. We have worked hard to create a user-friendly platform filled with valuable medical information and resources. Our goal is to foster a supportive community where you can find guidance and connect with others. We invite you to explore the site and discover all that it has to offer. We hope this updated resource will be a valuable asset on yo

World ARM Day 20th March

Representing ERN eUROGEN and Max's Trust - "Urological Concerns in ARM - Importance of Lifelong Care"

Good evening! Today, I just completed my March for Max on my treadmill, and I want to share how this simple activity can turn an ordinary workout into something meaningful. Whether you’re a fitness enthusiast or someone looking for motivation to get moving, this post will explore how treadmill workouts can become more than just exercise—they can be a form of connection, purpose, and personal growth. Treadmill workout in progress during March for Max What is March for Max? Mar