VACTERL Association

​​Every child with VACTERL Association is unique, not all features are present in every child. 

A diagnosis is usually made when three or more characteristic features are identified, but the type and severity of these features can vary widely. 

Diagnosis may sometimes be made before birth, but more often it happens after birth when a baby needs treatment for one of the main features. 

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V – Vertebral (Spine):

With monitoring, physiotherapy, and specialist care when needed, many people maintain good mobility and stay active.

 

A – Anorectal:

Advances in surgery, bowel care and continence support help children gain independence and confidence as they grow.

 

C – Cardiac (Heart):

Many heart conditions can be treated or well managed, allowing children to take part in everyday activities and enjoy an active life.

T/E – Tracheo-oesophageal / Oesophageal:

Early treatment and feeding support help children develop safe eating, good nutrition, and strong growth.

 

R – Renal (Kidneys & Urinary Tract):

Regular monitoring and timely treatment support long-term kidney health and wellbeing.

 

L – Limbs:

Occupational therapy, adaptive equipment, and supportive communities help children build skills, confidence, and independence.

Supporting the Child, Every Step of the Way

With the right medical care, family support, and encouragement, children can grow into confident young people who pursue education, friendships, careers, and independence on their own terms.

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Additional information available at these websites:

• National Organisation for rare diseases VACTERL page

• Cincinnati Children's Hospital - VACTERL page 

• Great Ormond Street (GOSH) VACTERL page