Charity's in Partnership
TOFS is a UK-based charity called Tracheo-Oesophageal Fistula Support, dedicated to supporting families of children born with Oesophageal Atresia (OA) and Tracheo-Oesophageal Fistula (TOF) and related conditions. It provides emotional and practical support, including information, resources, and opportunities for connection among affected families.
The VACTERL Association Support Group is a support group dedicated to helping families affected by VACTERL/VATER Association based in the UK. Why not visit our online forum for help and support, as well as talk to other people connected through VACTERL.
ERN eUROGEN Patient Journey for ARM:A comprehensive guide to lifelong care and treatment pathways.A range of materials are available under "Urorectal/anorectal malformations" Short brochure, audio, list of international organisations, and sexual support website.
At the heart of our charity are the Buttony Bears. Soft, cuddly teddy bears with a unique feature: a button stoma, just like the children who receive them. These special bears are designed to offer comfort, familiarity, and a way for young people to better understand and talk about their stoma in a gentle, age appropriate way.
Pyjama Fairies is the only UK charity to make pyjamas and surgical gowns specially designed for babies and children up to age 16 having surgery or any other associated medical test. Each garment is made in colourful, age-appropriate fabric and is designed to minimise discomfort when medical intervention is necessary.
Facebook support group for adults and parents of children in the UK affected Anorectal Malformation / Imperforate Anus.
Offers support, information, and resources for children and families living with continence difficulties.
Bliss exists to give every baby born premature or sick in the UK the best chance of survival and quality of life.
ARM and Hirschsprung’s Disease
Anorectal malformation can influence intimacy and sexuality through physical differences, body image, and emotional experiences.
This website provides information and support regarding relationships, sexuality, and intimacy.